Critical Airway

It was a tough night. Ari has been resistant to the sedation, therefore, waking up and moving more than they'd like. At one point she woke up as they were changing her sheets, I walked over to try and comfort her but only upset her more. She wanted me to hold her and tried to get up. When I didn't pick her up, she started mouthing "Mom," since she has a breathing tube in she has no sounds. That was my breaking point. Carlos was great at stepping in.

With the increase in sedatives, at times they have had to 'bag her' (which is like performing CPR with a bag that blows oxygen into her lungs) because her O2 levels drop and the ventilator was not working on it's own. She also was trying to breath over the ventilator and as they were bagging her, it was making it harder for them to stabilize her, so they had to give her some really strong stuff to basically paralyze her for a period of time.

She is very sensitive to what's going on around her. She has stood up to her title she once held when she was first born and in the nicu (neonatal intensive care unit) which was "feisty." She was resistant then to sedation and was usually bumped up and that was at 2lbs. God has given her a strong will and for that we are grateful...although at times hard.

There is purpose in all this. I praise God for the strength He gives us each moment, without Him this would all look very different. We are so grateful for all the support we've had. Our church has been amazing coming out to pray with us and Jerry, our Care Group Leader who just sat with us throughout the whole 5 plus hrs of surgery. The phone calls, text messages, emails, all offering prayer and support ~ amazing! We are so blessed.