Ari had her breathing tube taken out yesterday around 3pm. She has been doing well breathing on her own. It was so weird holding her since it had been 5 days, she's swollen, has no coordination with all the meds in her, and is going through withdrawal. The withdrawal is the hardest thing to see now. She is very shaky and fidgeting a lot. But she gives me a smile every now and then. She's said a few words, she doesn't have her voice back yet, very scratchy. Every once in a while she has been able to say something clearly, her first clear word/name was "Mia." She's been saying names as if she's asking where everyone is. A speech therapist is coming to see her.
The doctors have been keeping a very close eye on her, especially her ENT. He's been amazing and coming to check on her between surgeries. It has definitely help me feel better knowing that he's following her closely. He's been very protective of her and what they do and the meds they give her. They wanted to put a feeding tube back in to take air out of her stomach and give her meds and he said no. He wants nothing around her airway and just told the nurses they need to find another way. So I'm grateful that he's protective of her, but her poor little belly is still big and hard. For some reason they are taking time to get that sorted. The nurses say they usually don't see specialist like that. So I feel God's favor on us. He has answered all of our prayers and then some.
4 comments:
Hi sis! Im ashamed to say this is my first time commenting. Im not good like you with this stuff. Anyway, im so happy to see little Ari awake with her little Dora next to her. I cant imagine what you are going through seeing her experience the withdrawal and everything else she is going through. What a blessing that you have your ENT that has been so careful and protective of Ari. I know despite all of this you have seen God's hand in everything. I wish I could do more for you during this time, sis. But I thank God that you have your brothers and sisters at Sovereign Grace that have been so faithful in serving you and your family! Tell Ari her Titi and counsins love her and give her a big kiss. Love you! BTW thank you for taking time out to do this blog. It's amazing!
Rachel, first of all no need to be ashamed...you've only been pregnant and going through your stuff. Anyway, we see you and talk almost everyday - everything in this blog you know ;o) Love you girl, thank you for just being there for me in so many ways, more than you give yourself credit for. God has used you in my life to keep me focused, you point me to the cross, even when you don't know it. Your example of a wife and mom has encouraged me. I will give Ari kisses for you all.
So glad to see your precious little one with her eyes open!! It must feel so good to be getting Ari back little by little. I saw your 2 oldest today at HDO...they seem to be doing quite well :) Praying for you!!
Love,Kathi
Thanks so much Kathi. The older ones were so excited about going to HDO today. They are holding up well. Thanks for your prayers. Kari
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