Tomorrow they will take out her breathing tube and see how she does. They took a look at her airway today and put a smaller breathing tube in. She had some swelling which was expected. They started steroids which should help that swelling. They have started to wean her off some of her meds. Unfortunately she required a lot of medication to keep her sedated. I've heard her described as requiring an "impressive" amount of sedation. I always wonder what long term affects this will have, they usually find out years later. It usually looks like this, "Oh by the way, we don't do those types of sedation anymore because studies found that they caused "xyz." Let's face it, some of these meds sound like they don't even belong on a pediatric floor. But I'm trying to be focused more on her comfort rather than the narcotics in her body.
On Saturday they finally got her rested. She has been comfortable and sleeping well since then. I miss her. Thursday and Friday we were constantly watching her, since she moved so much and kept waking up. So after Saturday we were happy she was comfortable, but we just missed her. We have videos of her that have kept us going.
Prayer request: As I write she just finished having an xray because her oxygen levels have been lower than they should be and that's with higher oxygen being given through her ventilator. They are going to reposition her in hopes that the tube may just be sitting against the trach wall, causing less ventilation. If you could pray that God would allow her to be well ventilated and that tomorrow she could come off the ventilator and be comfortable.
1 comment:
Still praying!!
Love,kathi
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